tag:blogger.com,1999:blog-3364669902775880430.post539065136020401989..comments2023-05-22T05:23:33.917-07:00Comments on Love in the Time of Chronic Illness: helping partners cope with illness: My New Years Resolution: To Complain MoreBarbara Kivowitzhttp://www.blogger.com/profile/04069286366650175153noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-3364669902775880430.post-80792568686740963822014-02-24T20:26:35.558-08:002014-02-24T20:26:35.558-08:00This was exactly what I needed to read today. I ju...This was exactly what I needed to read today. I just found your blog and am so thankful for it. My name is Cassie and I am 18 and pre engaged. I have RSD/CRPS and am fighting this disease head on (I run RSD/CRPS 4 a cure) but was having a really bad day today. My boyfriend (pre-fiancé) and I were talking and I apologized for complaining and he was reminding me that as his future spouse he didn't want me to hide what I am feeling but show it. No mask just the real me, this is hard to live with and it's hard to feel like a burden but I loved your statement about how complaining can be a way of connecting. Thank you for your blog, it is a huge encouragement. Cassiehttp://rsdcrps4acure.tumblr.comnoreply@blogger.comtag:blogger.com,1999:blog-3364669902775880430.post-27179312556806739892013-01-10T17:33:34.970-08:002013-01-10T17:33:34.970-08:00Yes!
Many years ago I was sent to an insurance-c...Yes! <br /><br />Many years ago I was sent to an insurance-company-mandated pain clinic where they tried to teach patients to suppress and hide any sign they were in pain. When I was leaving there, we had a meeting that my then-boyfriend/now-husband attended where they told him to ignore me if I talked about being in pain or demonstrated any body language signals that I was in pain. I angrily interrupted that it would be the death of my relationship if I couldn't be honest and express how I was feeling to the person who cared for me. <br /><br />I'm a firm believer that bottling things up magnifies them. If I can tell my husband that I'm in intense pain or that I'm frustrated by my inability to do "normal" activities without paying a steep price later, it allows me to move forward rather than dwelling on it over and over again inside my head. Expressing it, even if nothing else changes, helps enormously and allows me to cope with it all. Avivahttps://www.blogger.com/profile/16411667763810131618noreply@blogger.com